My girls spent some time entertaining mom and dad today by doing a cheer and I thought I would share but, yet again, the video clip is too big. I was loving every second of it. I think they are just about the cutest things in the whole world :) Granted, I am biased but who cares? The cheer was brought on by the COMPLETELY HORRIBLE movie Bring It On 3. It really was no good, but the girls loved it. Don't worry though, my head has recovered from its repeated banging on the wall.
I got a special order today from an etsy customer. Exciting right? It is for a larger dragonfly in vibrant green for the lady's garden. She has already ordered a different dragonfly so that is a good thing because repeat business shows customer satisfaction. This excites me very much. I am attaching a link that I would like all of you to look at and send on to anyone who makes polymer beads. The program is a wonderful one that has helped Caden through many a rough day and procedure. The site is: http://www.beadsofcourage.org/ please check it out and consider making donations. It really has been a blessing for my family and is such a wonderful selfless idea. Along those lines, here is the latest news from my mother. I am sad and my heart breaks over that little guy and all his worries. I am however glad that my mom and sister keep me updated.
Hello again,
Just wanted to update you on what has been happening with Caden. As I told you he has some spots that have been appearing on different parts of his body. They start out as just a little red dot then get bigger and hurt. The infectious disease doctors came to see him today. They don't think he has chicken pox or shingles. Actually they don't have any idea what they are so they want to biopsy one of them tomorrow.
Sunday Caden started complaining that his head hurt. It continued to get worse to the point he was waking up during the night crying that his head hurt. Yesterday we requested the team of doctors to come talk to us. The decision was made to do a CT scan on his head, chest and abdomen today. We were told this evening that they do not see any vascular leaks (bleeding) in his head (whew, glad to hear that!). They don't know what is causing the head pain. We will be paying close attention to the head pain and swelling for any changes.
Hopefully it was just related to the fevers he is having. They did see "a lot" of small nodules in his lungs. Apparently they are different than the ones we treated last round. (I wonder if they the same as what is on the outside...just a thought flitting through my head) They think they're a virus, not bacterial. We will be meeting with the pulmonary specialist late tomorrow morning to see if he agrees with the team to do the same lung procedure that they did last round. If yes, they will have a surgeon biopsy one of the spots at the same time (one anaesthesia). Risk? Yes there are always risks but at least they will be able to identify the spots. With a 0 ANC his body will not be able to fight any potential infections. However I'm not to worried since they have him on some heavy duty antibiotics and we will do everything possible to keep it sterile.
We will continue to monitor his counts because of the rapid drops we've seen this week. There has been traces of blood in his stools but nothing showed up on the CT so they're not worried. I'm very sad to say....Caden's new hair is falling out. He is so cool about it though, he just says "Don't worry Nana, it will grow back!". He is such an awesome little boy!
We are ready for his counts to come up but we think we still have a way to go. The nurse told me his ANC was 0 for 36 days last round. If you remember, we were told this round would be "at least as bad as the last one.". I don't know if it is worse but, it has been different! Well it is late and has been a long day. Thank you for keeping us in your thoughts and prayers. Cindy
Well, as I stated in my blog last night, I am now making Large Dragonflies as well as regular sizes. The lady who ordered the big green one indicated that she was interested in a couple of large ones so I have created a red/orange one too. They are both listed on etsy, but I am attaching pictures here. The are really cool hanging in my window surrounded by smaller ones. I like them a lot.
en thinking about it all day and honestly it is such a kind and selfless thing to do that I am moved to tears. I mean you don't know my family and you don't know this sweet little boy, but you were moved to do something kind anyway. I don't think that I can tell you quite how much that means to me. I was wondering if you might string them (Or I Can) and send him a special beaded strand of courage from Germany. You could include a special note if you wanted as well. It's a small idea, and you are already going beyond what you need to, so please feel free to say no with the knowledge that I wouldn't be upset at all. It is a very special thing you are doing and I thank you from the bottom of my heart. 
en thinking about it all day and honestly it is such a kind and selfless thing to do that I am moved to tears. I mean you don't know my family and you don't know this sweet little boy, but you were moved to do something kind anyway. I don't think that I can tell you quite how much that means to me. I was wondering if you might string them (Or I Can) and send him a special beaded strand of courage from Germany. You could include a special note if you wanted as well. It's a small idea, and you are already going beyond what you need to, so please feel free to say no with the knowledge that I wouldn't be upset at all. It is a very special thing you are doing and I thank you from the bottom of my heart. 
