We went to the multi-craft store today and had a really fun time painting pottery. I wish I had thought of it sooner because the dish I made is for my friend Tatiana's birthday, which is Thursday. I can't wait to see how my dish and the kids' dishes turned out. We really did have fun :) Now for the update on Caden. Below is a letter from my mother and a picture.We took Caden to the clinic yesterday for labs, a doctor visit, the final bone marrow and lumbar puncture. His ANC has dropped back down to 176. Normally this would mean he would have to go back into the hospital but the doctor told us if we are real careful with him (keep him isolated) he wouldn't have to. So we keep him in the room at the RMH or walk him straight out to the car.
They cancelled his entire follow-up procedures until next week with the exception of his labs. We will have labs done again on Thursday to see what his counts are. The CT scheduled for this Friday was rescheduled for Monday Aug. 4th; they haven’t given us a date for the final bone marrow or spinal lumbar puncture yet. (August already; can you believe it!)
Caden is taking all of this really well. He isn't fighting us on staying in the room because he doesn't want to be in the hospital. He was in there so long that every time we are in the car, he has to have his window down for fresh air. It is bitter sweet; you realize how much he misses being outside but it isn't worth the risk to take him to a playground or to the beach yet.
Attached are a couple of pictures from his discharge date that you will love. It was a blessing to share in Caden and Schelly’s excitement when he saw his mother coming toward us on the path to the RMH. He had his arms reaching out for her as he ran toward her saying, “Mommy I'm free from the hospital!!!!” I wish I had taken a picture from behind to capture the look on her face too; but his smile is priceless!
They cancelled his entire follow-up procedures until next week with the exception of his labs. We will have labs done again on Thursday to see what his counts are. The CT scheduled for this Friday was rescheduled for Monday Aug. 4th; they haven’t given us a date for the final bone marrow or spinal lumbar puncture yet. (August already; can you believe it!)
Caden is taking all of this really well. He isn't fighting us on staying in the room because he doesn't want to be in the hospital. He was in there so long that every time we are in the car, he has to have his window down for fresh air. It is bitter sweet; you realize how much he misses being outside but it isn't worth the risk to take him to a playground or to the beach yet.
Attached are a couple of pictures from his discharge date that you will love. It was a blessing to share in Caden and Schelly’s excitement when he saw his mother coming toward us on the path to the RMH. He had his arms reaching out for her as he ran toward her saying, “Mommy I'm free from the hospital!!!!” I wish I had taken a picture from behind to capture the look on her face too; but his smile is priceless!
Please continue to pray for healing and a smooth transition.
Cindy
3 comments:
Beautiful picture.
yeah!
Well, I am very excited about the whole thing too. I just found out that he goes back tomorrow for follow up ANC counts but things are still outpatient rather than inpatient. What a relief for all of them.
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